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Tuesday, January 27, 2015

Tuesday's Tests

It was a long hard day. Cat scan was at 8:30 am Then I had to blowing a tube for 50 minutes and walk for six. My normally low blood pressure shot up so high I had to be monitored. Then they wheeled me over for a heart echocardiogram where the Tec spent almost an hour pushing into my chest. I have bruises. 

I think God for good friends who take me into appointments. I am also thankful for wheelchairs. 

Today was a rough day. Now waiting for results.

Sunday, January 25, 2015

Remembering My Mother On Her Birthday

Today is my mother's birthday. She would have been 94. She died two days before my 24th birthday. She was 64 yrs. old. 

Remembering her on this day.

Saturday, January 24, 2015

Time For New Hospital Tests

It has been a wonderful birthday "week" topped off with four inches of snow last night. But now I face a new set of hospital tests on Tuesday morning.

Have to be in Lexington at 8:30 a.m. for a cat scan, echo, and walking test. This will determine for sure if I have pulmonary hypertension. I'm still having problems with shortness of breath, not being able to walk for long distances, badly clubbing nails (curving over), etc. so if the test doesn't show this diagnosis, he said there is definitely something wrong with my lungs. If it is PH, I go for a heart cath on the right side and medications will be added to the already mound of meds I take.

And so the journey begins. Tests, diagnosis, treatment. Not something I'm looking forward to for sure.

Photo of my Clubbing Nail:

Winter Wonderland

The forecast was for less than an inch. When I woke up this morning, we had four inches on the ground. So beautiful! When I took a look at the power lines, I was amazed we still had electricity! 

Even though the cold is hurting every inch of my body, the snow smells "clean." So pristine. I took photos from the doorstep before anyone spoiled its beauty.

Thankful to my next door neighbor who came over and shoveled my walk way this morning. He was also so very kind to take my old mattress and box springs to the recycle bin in town yesterday. 

Sharing some Wilmore snow:

Friday, January 23, 2015

Snow and Yellow Roses!

Today I was blessed three times - first with snow on the ground, a brand new mattress set (thanks to Sandy), and then with beautiful yellow roses!! No idea who sent them, but if you read this, THANK YOU! You made my day!!

I think Rascal has the best idea of all. Snoozing.

Wednesday, January 21, 2015

A Great Birthday

It has been a great birthday week. My best friend came up from AL for a week and we did so many fun things together. Stayed at Talbott B & B in Bardstown, KY, visited My old KY home there. Talbott inn is the oldest inn in KY. Since business was slow in January, we ended up being the only people in the building Sunday night. Felt like we had the house to ourselves. Loved it.

Stopped by the Abbey just down the road.

Ate at Saul Good in Lexington last night. They did a chocolate covered popcorn ball for my birthday.

I am so exhausted, but it is a wonderful exhausted. When Sandy left for the airport this afternoon, I went to bed.

If this was my last birthday, it couldn't have been any better.


Wednesday, January 14, 2015

Doctor Results

Yesterday I saw a pulmonologist. He seemed good at what he does so I was kind of impressed. I still hold out opinions on doctors until I know further, but he made a good impression.

I learned more about pulmonary hypertension. If gone untreated, death occurs within three years of onset. There is no cure, but there is medication to slow it down (just like lupus). It can be caused by several things, but lupus was top on the list.

He said he leans more toward a diagnosis of pulmonary hypertension, but wants to do tests. On January 26th I go back for an x-ray, echo, and walking test. First two are easy, but walking has become difficult for me. I have shortness of breath. My chest hurts. So we will see.

He said if the pressures inside my heart show lower levels and if by some slight chance this isn't PH, there is something wrong with my lungs due to the intense clubbing of my nails.

If there is a diagnosis of PH, my next step will be heart cath on right side. They will see how everything is working or not working.

I realize it is just one more thing on the list, but it hasn't sunk in yet. I've had periods of being overwhelmed and then just coping. It would explain the shortness of breath when I try to walk or even when sitting still.

I am anxious.