Tuesday, June 3, 2014


Since February, I have been attempting to gain assistance for the drug Benlysta. It is designed for lupus patients. I ended up waiting two months before finding out no one bothered to mail the application to me from the doctor's office. When I had my last appointment, the office took my completed application and faxed it that day.

Two months later, no word from the company. Today I called only to find out they don't have that medication! Therefore, they cannot give me assistance. The doctor's office gave me the wrong application! The company didn't even have a record of my information being faxed to them.

I'm so mad I could spit nails! Will I ever find a doctor's office that is competent enough where I don't have to keep following up and making sure everything is in line? I'm furious! Two more months wasted while I suffer!

I called the office and left the message to the nurse of the doctor. If they don't straighten this out, I'm searching for a new rheumatologist. I'm so sick and tired of  "doctors!"

Sometimes I wish I were a "somebody" so that I wouldn't have to keep experiencing this horrible healthcare. If I were a celeb, this would not be an issue.

There is no one to fight for my healthcare. Only me. No one to call and straighten out problems. No one to stand up to ER doctors who don't bother to examine me or even prescribe medication correctly.

I'm tired. I'm tired of fighting the medical profession just to get treatment for a chronic life threatening disease. I'm tired of being stepped over.

It scares me to think what will happen when I can no longer speak for myself.

Five months later and I still don't have the medication I need.


  1. Mary, so sorry things have been difficult for you lately. Wouldn't it be great if medical people actually did their job and cared. ER doctor's never examine people anymore, they stand, look at patients from a distance and that's it. Last time I had to go it was like that and then he charged $1000 for his bill, to which the insurance paid him $80. I hope you can get things straightened out soon.

  2. Karen thank you for sharing your experience. At least those who read this post will realize what's going on in the ER before they have to experience it!