Sunday, June 18, 2017

Doctors, Hospital,and Surgeries

Since my last post I've had the cataract removed from my right eye. Great results! Can see better and is healing well. The left eye was done in March and I'm still having pain, blurry vision, and watery eyes. Lupus is to blame since it causes dry eye. Doctor put a plug in the corner of my eye to hold in drops in hopes of moisture being retained. Wouldn't do it again. Driving me nuts.

Saw the surgeon last week for my continuous back problems. Most just say I have spinal stenosis and degenerative disc disease and they can do nothing. This time test results showed L4-5 slipped off and now they are bone on bone. TLIF surgery will be done on July 26. Will be in the hospital for at least three days barring any lupus flares. Then moved to rehab for two weeks. May or may not remove pain, but if I don't do this it will continue to worsen. Pain is off the chart right now. Am having to sleep with a pillow propping up my back.

I'm so tired. Tired of suffering, wondering why I'm still here, why I'm having to deal with all of this alone. I find myself getting homesick more often, just wanting to go home, crawl into my old bed in the house where I was raised and pull the covers over my head. Other times I just want to walk on Panama City Beach at night, listen to the waves and feel the power of God wash all the pain and suffering away! At this point I can only hope to go home again alive. I will go home when this body is dead.

So now I have a month to mentally prepare for major surgery, get Bitty, Buddy and Tom secure for their care, and find a way to buy new gowns. The ones I have were given to me in 2006. They are full of holes from years of wear and not good enough for recovery.

I just wish I had my family.

Wednesday, May 17, 2017

Temps and Sores

Every time the temperatures go up, I break out with a vasculitis flare. The tiny bumps turn to horrible and painful sores. When I think the flare has subsided, I find more. This morning there were ten more tiny bumps just waiting to turn to horrible sores. 

Lupus is a painful disease. I hate it!



Thursday, May 11, 2017

Added Another Doctor

Had an MRI done last Friday. Bad degenerative disc and pinched nerve added to the list. So they're sending me to a surgeon. My back has really hurt the past few months. I can barely stand five minutes without the pain overwhelming me. The appointment is June 12th. Hope he can do something to alleviate the pain. 

On wheels now. Not car wheels. Rollator wheels. It is a walker with a seat. Although part of me is sad I've reached this stage, I'm so thankful to have it. I can sit on it to wash dishes. Can sit down whenever I go anywhere that requires standing. One day I'll graduate to a motorized wheelchair. I hope.

With so many doctor's appointments the cost of gas has risen for me. This month alone I've had six appointments (one more on Monday). At $10 a trip, I've spent $60 just on gas. Also with doctors adding more prescriptions to my already bulging list it has become so expensive just to fill a prescription. I'm thankful for Medicare Part D. Without it I couldn't buy my medication. I'm up to eighteen prescriptions now. Yes, taken every day. I'm just feeling overwhelmed. Sometimes I think it just isn't worth the fight anymore. As this disease progresses over the years it brings with it more and more damage that is irreversible. I'm simply worn out.

The Retina Specialist informed me that I would have to see him for the next five years. Turns out Plaquenil not only damages the back of the retina, it also stores in the system and continues to do damage until it is out of your system. Since I had to take it for lupus for twenty-two years, I will now be fighting the damage of this drug in my eyes. I also found out my retina is starting to thin which also could cause macular degeneration. I guess it will be happy to join dry eye from lupus, glaucoma and vision loss. Top it off with another cataract surgery.

When I received my insurance update for the past few months in doctor visits, I saw where it cost over $7,000 to remove one cataract. The Benlysta I get by IV every month cost $17,000 per visit. If Congress wants to make a difference in our lives, they should regulate pharmaceutical costs. They're making a killing while killing us in the process. 

I am a big believer in the power of prayer. Would appreciate your prayers. And for the person who tried to post something against my beliefs, give it up. You're not getting free advertising on my page. 

Can't believe June will be here before we know it. To me the only thing about days and months reflect back to doctor/hospital appointments on the calendar. I'm so tired and worn out from going to the doctor, going for tests, and going to get Benlysta. If I have to do two appointments in a row, I'm down for the count. Just cannot function. It has been a rough few months. 


Wednesday, May 3, 2017

Welcome To My World

Monday I saw my rheumatologist. I remembered to ask her for WRITTEN prescriptions this time. Just too much stress chasing them down and doing without until her office decides to fill them again. She was concerned about all the sores scattered from head to toe. I'm having a vasculitis attack. Tiny bumps appear, itch like crazy then morph into huge sores. Thing is my local doctor gave me a prednisone prescription (high dose) to help with the chronic back issues I was having. The prednisone didn't even tough the vasculitis this time. All it did was make me gain three more pounds. I hate prednisone! 

She wasn't too concerned. I left with no other prescription to counter attack this mess.

I asked her about getting a rollator, walker/chair. I can only stand five minutes before giving out now. My back issues have grown worse over the past five years. So she wrote a prescription and we found a local place that dealt with medical supplies. Problem was she only wrote rollator balance on the prescription. Has to be more detailed than this for Medicare to cover it. Now I'm in a holding pattern until that office decides to fax another prescription for it. I just can't seem to win. Already approved by insurance. Slow slug doctor's office causes more problems.

I've reached the fever stage of the vasculitis flare. Cold/hot flashes. Very painful. Sometimes I just think it isn't worth the stress. Life is hard enough without dealing with this mess.

So tomorrow I see the Retina specialist to see where the plaquenil is in my eye damage and if any is left in my body. Waste of time I think, but eye doctor insists. Monday I go for Benlysta IV. The following Monday I have to go back to Lexington for a body scan to see if the osteoporosis has returned and to check for any stress fractures. All of this costs gas money and boy has it been expensive lately.

I'm sick and tired of being a professional patient!!

Wednesday, April 26, 2017

Ouch!!

So tired of breaking out! So tired of itching! Another vasculitis flare for the past two weeks. New bumps pop up, itch like crazy and then turn to sores. Such joy! I've been on prednisone for two weeks but only for the back pain. Hoping it would attack this vasculitis flare and remove the itch. I've learned to use hand sanitizer to kill the sting and then vaseline to seal the bump, but the sores still form. 

I hate prednisone! I've gained more weight from this horrible drug over the past twenty three years. Trouble is you can't get the weight off. If there is a pound or two drop, it is time to take prednisone again. I don't take it unless I'm suffering so badly I have no choice. It has become the go to drug from doctors. It also causes diabetes with long term use. Not worth it! Another reason I hate Prednisone is it tears my nerves apart. Every little thing makes me fall apart. One more week of this mess!


Walgreens home pharmacy called again today about my prescriptions. Same sad soul who doesn't speak up, has such a thick oriental accent you can't understand her, left a message on my machine because it was so early when they called. Had to listen to the message three times to get the phone number. Repeat of last week's message. It isn't time to fill my prescriptions. Yes, I know. That's why you put them on file and fill when due. Unfortunately, Medicare patients now don't get the option of going online to choose auto refill or keep the prescriptions on file that are not ready to be filled yet. I have to keep up with what's due and call them two weeks before. Every time I told her something, she would say, "Well, here's what happened..." but she didn't know what happened. Why can't they get more informed people or at least give the option to speak to someone else? Didn't have a comment for why I've been receiving auto refill prescriptions in the mail this week. Received two yesterday. Between the stress doctors, their office and pharmacies put on us it is a wonder how we haven't added a new category on death certificates: Death by Medical field. 

It is spring. With it comes birds, birds, birds! I took my bird feeder down a few years ago because Grackles kept overtaking it. They are scavengers. Will eat anything and everything. Then they hang around pooping on my porch. I have to hose the porch every day. They devour my dry and canned cat food bowls. It has reached the point I can't put out food until Buddy and Tom show up and most times I'm so sick and forced to stay in bed that I can't keep up with when the cats come.  I'm reordering dry food faster. This has been a bad month cost wise with dry cat food. Those birds! Will be glad when they move on to their next stop.

And I'll be so glad when I can throw the prednisone bottle away!

 


Friday, April 21, 2017

Doctor Disappointments

Doctor appointment this past Monday. Just the GP. My back problems have worsened since I've been here. I have a bad disc and spinal stenosis. Now when I stand more than five minutes my legs are totally numb from the top of my thighs to the tips of my toes. (neuropathy in both legs and feet since late 90's). Told the nurse why I was there. Said I couldn't even stand at the sink to wash dishes because my back pain and numbness was so bad.

He said, "Don't do it then."

"WHAT?"

"You know, they say if it hurts don't do it."

They gave me a form to fill out. Answer questions to see if my medication is working on  depression. Trouble is, I told him, the questions were from one extreme to another. "Are you restless, agitated or at peace?"

"Well, if you qualify for one of those things listed in each question, circle yet."

I guess it doesn't matter what extreme you are in.

He's not my favorite person to say the least. Wish I didn't have to go through him before seeing the doctor. My blood pressure when up ten points when he was done.

Doctor examined me briefly and said I would need to have an MRI. Gave me prednisone AGAIN. In Dothan they would give me a steroid shot and set up an epidural to manage the pain. I should have told this to the wallpaper because no one listened.

As I was getting my blood test, the nurse passed by and said someone would call for the MRI, but they didn't know where or who.

This morning I called the doctor's office. Told them I never heard anything about the MRI. It had been five days. They told me it would take two weeks to see if my insurance would cover it.In other words,  I just have to suffer.

Thank you Obamacare for screwing up MRIs.

Went to a play at Asbury last night. They did "The Glass Menagerie." It hurts to sit, or lie down, or stand for long periods of time. So I finally remembered to take my back pillow for support. Pain was still bad, but I wanted to get out and go somewhere that didn't involve doctors. Just have to start taking that pillow with me even though it flattens so badly after a couple of hours of use.

If anyone has a suggestion for a pillow for spinal support, I'm all ears!!

Won't have another doctor's appointment until May 1st. So happy to have a short reprieve.

Easter Reminder

This past Sunday was Easter Sunday. Reminder of salvation through a risen Savior.

I started throwing up Saturday night. Two hours later I was sick as could be. Didn't get to go anywhere Sunday. My next door neighbors had so many family members show up they had to park in my driveway. Just a reminder of how alone I am in this world. My best friend put flowers on my family's graves. So beautiful! I miss them so much. I miss being able to put flowers out.

I asked,  "Wouldn't it be exciting to be standing in a graveyard when Jesus comes back? The Dead in Christ rise first..." Now she'll remember that comment every time she goes to put out flowers for me.

The graves surrounding my parents and only brother are my mother's family. Sad to see so many headstones with no flowers. There are four markers with my family. Mine is beside my brother's grave.

IF you have family, I hope you spent it with them. When they're gone, they're gone from this earth. The ache of missing them is overwhelming.





Friday, April 14, 2017

Eye Surgery

Next cataract surgery is June 7th. Until then I have to get the dry eye from lupus under control. Add another eye drop prescription to the list! When she checked me out yesterday my eyes were so dry the dye showed a desert floor! All kinds of lines!

Although I can't see well out of the left eye, the pressure came down. So the right eye is next. Will be so glad when it is over!

This week started with Benlysta. For three days I was wiped out and in pain. Yesterday I felt great. Today I'm back to horrible pain in arms, legs, and back. Temperatures are going up and I'm doing my best not to turn on the air. A fan works wonders right now. Even so I woke up freezing this morning. Just wish I could go twenty-four hours without pain. Weather yo yo is still affecting me.
Two doctor appointments next week and a break until May 1st.

Have a wonderful Easter. If you have family spend it with them!

Wednesday, April 5, 2017

Doctor Days Ahead

I must say it was so nice not getting up to go to doctor appointments. But now the doctor and hospital trips start again on Monday. 

Benlysta IV is Monday. Still finding myself drained and in more pain by the third week. It is as if I've run out of gas. Feel like I'm moving on fumes. Can't really tell if this stuff is working or not. Then again if I stopped treatment now I'd probably feel the more intense pain just like I did when I ran out of one medication and had to wait two weeks for the doctor's office to refill it. I'm sure it is doing more good than I can tell. If you want to know more about it, go here:  https://www.drugs.com/benlysta.html

Eye doctor is next Thursday. She's going to check on the healing of my eye from surgery and then set a time for the next cataract removal of the right eye. I still see in blurred vision from the left eye. Had hoped there would have been improvement, but glaucoma is also working against me along with plaquenil still in my system. I can tell the cataract is still growing. 

The following week is the MD. Not much of an exam there since they always depend on the rheumatologist to do the most care. Mostly check in, get prescriptions, and record keeping. Wish there were more. 

Weather takes its toll on lupus sufferers. This week is no exception. High temperatures, bad rain storms and possible snow from extreme drop in temperatures by the end of the week. Most of the time change in weather puts me in bed for days or weeks. It's hard when you're doing this alone. 

Would appreciate your prayers and support. Crazy medical bills still coming in. Found out a week ago one of my meds is not covered through insurance anymore. Cost an unexpected $77 dollars. 

Wishing you a wonderful spring.

Sunday, March 26, 2017

Rough Weekend

I'm assuming the fact that I'm still shaking is due to missing my medications for twenty-four hours. Today the tremors are bad. Sleep has been hard to find due to pain.

Just hoping all of this passes soon.

Friday, March 24, 2017

Just A Reminder

Just a word of warning to any lupus sufferer who has a bad memory. Weekly pill dividers are a necessity if you have reached the stage of being on lots of medication. I'm taking fifteen prescription medications a day with some more than once a day. If I had to remember to take them at certain times I'd be dead.

With this horrible disease comes mental issues. Foggy memory is one of the worst. Yesterday I felt so sick and disoriented. Making any decisions was next to impossible. I was shaky from the moment I stood up from awakening. Immediately fell. Not a good way to start a day.

As the day progressed so did the unbearable pain. Went to bed early and when the pain lessened I fell asleep. Woke this morning still feeling odd.

When I took my morning meds I found the problem. I had forgotten to take my meds yesterday morning, afternoon and last night. I don't recommend doing this! Be sure to take your meds if you want to function close enough to normal as a lupus sufferer can.

My system is still off kilter. Still shaking. Even though I'm the only one who takes care of me I still have problems functioning from time to time.

A few weeks ago I had to call the rheumatologist office because one of my prescriptions had not been called in. After days of going back and forth with her nurse and the pharmacy, I finally had to call the doctor's​ office and tell them to call in the prescription because the electronic one never went through. I don't think I should have to chase down my medications. Sad when a doctor's office has to be told what to do. After four days they finally decided I was not the one responsible for calling it in. This disease is hard enough without going behind the doctor (who never takes responsibility for the problems).

I miss my rheumatologist from Alabama. Never had to worry about finding doctors when I have other issues. Never had to chase down medications.

I learned a great deal about medication. Never skip. Will send your body reeling! And make sure you find a doctor you don't have to clean up behind.

Wednesday, March 8, 2017

And So Another Flare

Comes with the territory! Physical stress, emotional stress, change in weather, or no sign at all. Insomnia is a side effect of lupus for me. Two days and nights of no sleep and finally I started to drift off at 3:00 a.m. this morning.

Pain, joint swelling, off and on fevers have been present for this round. Physical stress of having surgery, emotional stress from life in general, and the rain coming in combined for a doosy of a flare. Hurts just to type.

Today I had to chase down my prescriptions. Doctor's office said they sent it in. Pharmacy said they sent request but had no response from Doctor. I believe the pharmacy. Never had any problems on their end. The nurse I spoke to at the doctor's office gave me the same song and dance as the last time this happened. "Oh we sent in the prescription," she said, "you'd better call them again."

I informed her I wouldn't be calling again and told her to call the pharmacy. After all, I've already called both twice today. It isn't my job to chase down my prescriptions. All I ask from the rheumatologist is to keep my medications up to date. When they don't, they blame the pharmacy. Never have they taken responsibility for lack of action. So tired of doing this. Miss the doctor I had in Dothan. Never had to worry about chasing medications or appointments.

Physical stress set in during surgery. Any physical stress causes flares with me. I've been in bed since last week's doctor follow up (except for Monday). Just wiped me out. Insomnia took its turn soon thereafter.

Swollen joints are hard to deal with when you're trying to take one day at a time. Seems to be the road for someone who has suffered from this disease almost 23 years.

My vision is still blurred. Doctor said most people see much better after cataract removal. Didn't work for me. Still don't have a choice in removing the one on the right eye. It is growing at a rapid pace. If I had a choice between losing my sight or hearing, I'd choose hearing any day of the week. Said it will take six weeks to heal up. With lupus it may take longer.

So many days I'm just sick and tired of struggling. Just makes it harder when you have no family.

I've stopped watching the news. Stress of every day life is hard enough without having to determine which news story is true and which one is a lie. So I turned to reading last summer. Read over 40 books while trapped inside from the heat and humidity. Now it is taking me almost two months to read one book. So frustrating.

Life would be so much easier if I had someone else to deal with the day to day problems. Being sick is hard enough. Mixed together it just seems impossible some days.


Thursday, March 2, 2017

After Surgery

I find the hardest part of facing surgery is the fear of the unknown. Never having eye surgery before and knowing I would be awake all added up to dread and fear. The surgery itself wasn't as bad as I thought. The only disturbing part was hearing the machine removing the cataract. Sounded like someone sanding a hardwood floor.

Yesterday I stopped to eat and went straight home to sleep. My only mishap was running into the bathroom door. I have a new respect for those who see out of one eye every day of their lives.

Early morning Dr appointment where the patch was removed and tests done. My eye is jumpy every time I move it. Still blurred and have six weeks of healing ahead. But the pressure that had been extremely high was now perfect. So six weeks of four different eye drops and one week of sleeping with the patch. Still have hope!!

Friday, February 24, 2017

Surgery a Few Days From Now

My cataract surgery is Wednesday at 8:00 am. Most people say it is no big deal. Well it is if you have other health conditions.

 Filled out pre-registration forms on line. Stated a person had to drive you home. No problem. Said someone had to stay with you for 24 hours. That is a problem when you have no family. What they don't know won't hurt them.

Just wish I could go back home.

Thursday, February 9, 2017

Update on Cataract surgery

Saw my eye doctor Monday. After multiple tests, doctor scheduled surgery to remove the cataract on my left eye. She said she couldn't give me any hope in regards to improving my vision because I had too many things working against me: plaquenil toxicity, immunosuppressant medication (benlysta), glaucoma, lupus, and dry eye from the lupus, She also informed me that I run a higher risk of infection and possibility of losing this eye because of all of the above. With lupus my immune system is over active causing any physical illness to go off the charts. Instead of my immune system attacking the illness, it attacks my body. So Benlysta suppresses the immune system. It also opens me up for infections.

Surgery is scheduled for March 1st with a follow up on the 2nd. Not looking forward to this. The cataract on the right eye is now as large as the left. Thankfully the new eye drops have dropped the pressure in my eyes allowing me to have surgery.

This time of the month the Benlysta wears off. The pain is unbearable. Fevers are frequent. Bed rest is a must. My next IV infusion is Monday. Sometimes I wonder if it is worth it.

Appreciate your prayers!!

Monday, February 6, 2017

Lupus Flares and Update

Lupus flare hit me hard on Friday. Throwing up, severe pain, fevers, etc. Etc. Etc. Emotional upset, stress from neighbor problems, death, and life alone in general just all exploded like a volcano. Been in Bedford three days only to get up today to go to an eye doctor's appointment to do presurgery tests for cataracts.

No hope was given by the doctor to restore sight due to plaquenil toxicity, lupus, and glaucoma working against me. Hoping the removal of the cataract will lower the eye pressure and prevent blindness for awhile. Surgery is March 1st for left eye.

The neighborhood stress! If you wonder if your bad choices have any effect on others, YES IT DOES!! The police have been to the duplex next to me four times since February 1. The police now make it a point to patrol this neighborhood every day several times a day. Problem is they never take the problem away. I made a statement recently saying I wondered if I'd ever find a safe place to live. A friend responded with the question, "what is a safe place?" Spoken like someone who has never experienced unsafe places. I said a safe place doesn't require the police every other day!

Add all of this to the life of someone who is physically ill and whose life is going down hill every day and you have hope fading fast.

I have no patience with cry babies  in the news, fools who want to argue, and people who have never suffered pain. Sometimes I just want to tell Shut up already!

Trust me when I say screaming doesn't help! 

Sunday, January 29, 2017

My Heart Is Destroyed!!

My best friend in all the world died this morning. Rascal was 17 yrs old, but so healthy. No sign of what was to come. I went into the kitchen to get something and when I went back to my room, he was gone. Just that fast. He took half of my heart with him. Was two hours before my next door neighbor could bury him. So I sat with him, wrapped him in a blanket and petted him. He was loving on me just a few hours ago. Walking all over me while I tried to sleep. Typical behavior. 

Rascal ran through my door when he was about three months old. It was a very hot day in Alabama and he was searching for shelter and water. Immediately he was my baby. He's been the one soul I could tell all my troubles to, has seen me through so much loss, has been my faithful and true friend. He wasn't a pet. Rascal was part of my heart. 

I am so devastated. And I officially hate the month of January. Anniversary of my mama's death, her birthday, my birthday, and now Rascal's death. If I could cut it out of the calendar and skip it altogether I would. 

I love you my dear friend. Always.



Friday, January 27, 2017

January

This is a hard month for me. Anniversaries of my mama's death, her birthday and my birthday. Thankful this month is almost over. Then I wonder why it goes by so fast. 

My best friend was here for almost a week for my birthday. We hit a lot of Half Price Bookstores, some thrift, saw "Fantastic Beasts and Where to Find Them," ate birthday cake and dinner and rode a dinner train. Worn out. They day she left I went to bed and slept. Still worn out. It was warmer during her time here and now the cold temperatures have set in again. My hands are frozen as I sit here writing. Snow flurries fell today. We're suppose to have some sticking snow on Sunday. Time will tell.

The RJ Corman Dinner train (My Old KY Dinner Train) was wonderful. Beautifully set tables inside a 1940's car. Traveled a strip of tracks that belong to them. Saw different historic markers along the way like Jesse James safe house, wooden trestle that survived the War Between the States, a train depot where "Stripes" was filmed, etc. Here's the link that tells all about it: 

http://www.kydinnertrain.com/history.html


A list of Historic Points: http://www.kydinnertrain.com/downloads/MOKDT%20Points%20of%20Interest%202016%20back.pdf 


So thankful to have been able to experience this. Have always wanted to ride a train. 

Spent the night away from home. The room had a jacuzzi tub in the bathroom. Was so tall I thought I wouldn't be able to get in. The next morning I sat on the side, pulled both legs over and lowered into the tub. Was the best bath I ever had! The heat and jets released all the pain in my body if only for a short time. The tub had grooves cut into the side so that I could hold on and pull up. If I ever win publisher's clearing house, I'm getting a jacuzzi!

------------------------------------------------------------------------

While I was outside feeding the kitties late yesterday, three cop cars arrived at the drug house two doors down, body armour on, rifles drawn. Ambulance showed up and left after ten minutes, but the cops stayed over an hour. Of course they left without anyone to arrest. I will never understand this. WHY? While taking out trash, I heard them talking at the end of the driveway saying they could have arrested both of them for the bruises and cuts on them. Then why not?!?! So sick of these people. 

Thursday, January 12, 2017

When You're just too sick....

On days I'm just too sick to get off the couch, I cuddle with my kitties. They say animals are good to lower blood pressure. Good to help with illness in general. Rain is pouring outside and my outdoor kitties are protected in their own little crates on the front porch. Warm, clean blankets inside. But inside Rascal and Bitty always know when I'm too sick to move. They always curl up near or on top of me. I'm amazed at how they just know on bad days.

So when you're too sick to get off the couch, I hope you have some animal love to encourage you.







Yo yo Up!

The crazy weather is turning to the 60's, back down and up again! I can honestly say this weather is killing me! Everytime the pressure changes the pain increases. One day I awoke to a swollen right leg and foot. Barely able to balance on nerve dead totally numb feet (which is every day). So I pulled myself along the wall and cried the pain away.

The cold did damage to my heating bill. Yikes!!  Thank goodness for cat body heat!! So I will put off filling a couple of prescriptions until next month. Freeze or medicine. Bad choice either way. Cost of meds went up again. Fifteen bottles get expensive.

My birthday is January 20th. Born the day JFK was sworn into office. Glad to see a new person in office that day.

Many memories co email this month. My Mama died January 18, 1985. Two days before my 34th birthday. Her birthday is January 25th. Sadness has been a shadow over January for a long time.

Rain send to have settled in for at least two weeks. Enduring the pain will be tricky. Hoping the next Benlysta infusion will help with the pain. One day at a time.

Friday, January 6, 2017

A January Day

January showed its presence yesterday. Snow falling, temperatures dropping, single digits tonight. We really didn't get much accumulation. Maybe an inch. Still icy. Was a slip sliding experience to take out the trash awhile ago.

The place where I live is bitter cold. Block walls hold in the cold unless the heat runs nonstop. So I dress in layers now. Two heated throws wrap around Bitty and Rascal to keep them warm.

It is just bitter cold. With this crazy weather pattern I know it will warm up in a few days. Trouble is it dives from 60's to teens in a day or so. HARD on anyone with a systemic illness. I woke up this morning with so much pain. My body is still stiff and sore as if I lifted weights. Cause? Drop of temperature. Can't close my right hand because the joints are so swollen.

So not much gets accomplished here when the cold sets in. If I can accomplish one thing a day, I've succeeded.

Today I'd like to be home in Alabama.