Wednesday, May 3, 2017

Welcome To My World

Monday I saw my rheumatologist. I remembered to ask her for WRITTEN prescriptions this time. Just too much stress chasing them down and doing without until her office decides to fill them again. She was concerned about all the sores scattered from head to toe. I'm having a vasculitis attack. Tiny bumps appear, itch like crazy then morph into huge sores. Thing is my local doctor gave me a prednisone prescription (high dose) to help with the chronic back issues I was having. The prednisone didn't even tough the vasculitis this time. All it did was make me gain three more pounds. I hate prednisone! 

She wasn't too concerned. I left with no other prescription to counter attack this mess.

I asked her about getting a rollator, walker/chair. I can only stand five minutes before giving out now. My back issues have grown worse over the past five years. So she wrote a prescription and we found a local place that dealt with medical supplies. Problem was she only wrote rollator balance on the prescription. Has to be more detailed than this for Medicare to cover it. Now I'm in a holding pattern until that office decides to fax another prescription for it. I just can't seem to win. Already approved by insurance. Slow slug doctor's office causes more problems.

I've reached the fever stage of the vasculitis flare. Cold/hot flashes. Very painful. Sometimes I just think it isn't worth the stress. Life is hard enough without dealing with this mess.

So tomorrow I see the Retina specialist to see where the plaquenil is in my eye damage and if any is left in my body. Waste of time I think, but eye doctor insists. Monday I go for Benlysta IV. The following Monday I have to go back to Lexington for a body scan to see if the osteoporosis has returned and to check for any stress fractures. All of this costs gas money and boy has it been expensive lately.

I'm sick and tired of being a professional patient!!

No comments:

Post a Comment